Action alert! Ask your clinicians & geneticist to write a letter to CDC to support an ICD Code for Syngap.

  1. If you don’t know what an ICD-10 code is and why it matters, please read our earlier post about this critical topic: SyngapResearchFund.org/blog/icd1
  2. As you may have heard SRF’s Medical Director, Dr. Hans Schlecht has been advocating for an ICD-10 code for Syngap for a long time and in March, 2020 we hit a milestone with Dr. Smith-Hicks from KKI presenting to the CDC about the need for a SynGAP-specific code. We can’t thank them both enough.
  3. The CDC is taking letters of support until May 18th. Please ask your clinicians and geneticists to write a letter of support. They can find a draft and some background with this link bit.ly/SRFICD10 (careful it’s case sensitive) or you can just share this blog post with them.

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SynGAP Research Fund Updates

SynGAP Research Fund Updates

SynGAPResearchFund.com (est. 2018) improves the quality of life of #SynGAP patients via research & development of treatments, therapies & support systems.