Action alert! Ask your clinicians & geneticist to write a letter to CDC to support an ICD Code for Syngap.

  1. If you don’t know what an ICD-10 code is and why it matters, please read our earlier post about this critical topic:
  2. As you may have heard SRF’s Medical Director, Dr. Hans Schlecht has been advocating for an ICD-10 code for Syngap for a long time and in March, 2020 we hit a milestone with Dr. Smith-Hicks from KKI presenting to the CDC about the need for a SynGAP-specific code. We can’t thank them both enough.
  3. The CDC is taking letters of support until May 18th. Please ask your clinicians and geneticists to write a letter of support. They can find a draft and some background with this link (careful it’s case sensitive) or you can just share this blog post with them.



Get the Medium app

A button that says 'Download on the App Store', and if clicked it will lead you to the iOS App store
A button that says 'Get it on, Google Play', and if clicked it will lead you to the Google Play store
SynGAP Research Fund Updates

SynGAP Research Fund Updates (est. 2018) improves the quality of life of #SynGAP patients via research & development of treatments, therapies & support systems.