SRF | 2021 by the Numbers

2 min readDec 31, 2021

SRF NEWS

DECEMBER 31, 2021

SRF 2021: The year in review by the numbers

Listen to Mike’s latest podcast running down these numbers and view the numbers spreadsheet.

‍$1.8M committed to SYNGAP1 Research via 13 different grants to 10 institutions.
75k+ following @cureSYNGAP1 on 6 social media channels.
‍985 Patients counted in 58 countries.
154 US patients enrolled in Ciitizen.
143 Wednesday Warriors profiled on our site.
95 blog posts to update families.
52 Webinars in 3 languages on our website.
41 Episodes of our Weekly Podcast updating families.
17 Families currently or previously represented on our Board of Directors.
12 US or UK umbrella organizations joined to ensure SYNGAP1 is at the table.
10 Scientists and clinicians on our Scientific Advisory Board.
10 iPSC cell lines funded in two biobanks, +1 at Baylor we funded, +3 at Simons, +8 with Coba, +2 Penn, +1 at Cornell.
5 Patient movies on our site, including the award-winning Celebrating Caren.
5 Studies recruited for with Ciitizen, Kennedy Kreiger, Duke University, University of Toronto, and John Carroll University.
4 Roundtables Complete — 3 at AES & 1 en Espanol: 1st syngap.fund/rt1; 2nd: syngap.fund/rt2; 3rd: syngap.fund/rt; Espanol: syngap.fund/cc1.‍
3 Discrete organizations formed: SRF US, SRF UK & Fondo Syngap.
1 ICD-10 Code secured from US CDC. Working on an ICD-11 from WHO.
Zero donor dollars spent on overhead costs as they are all covered by our Founders.

Thank you for a great year and all your support. We can’t wait to see what the future holds for all our Syngapians and SRF!