#SRFHeller New Grant Alert! Epigenetics is part of the #SYNGAP1 puzzle & we can solve it

WE NEED MORE RESEARCHERS

WHAT IF

WAIT, WHAT, THIS IS REAL?

SHE’S FAMILY

THIS IS BIG

AND WE ARE GETTING A GREAT DEAL

IT GETS BETTER

HERE’S THE PLAN

  1. We have set up a GoFundMe page to pool resources.
  2. Two families have already started raising money. We are grateful for their leadership and hard work.
  3. #SuperSyngapianSteven, recently diagnosed in California, just raised over $5,000
  4. Chloe Smith, an Australian living in Sweden, is about to ride almost 250 miles (400+ kilometers) with her SynGAPian to raise awareness & raise funds for this project. #Cycle4Caspian. It is as impressive as it sounds, they just wrote an article about her in the Swedish press. Just below, you can see the graphic made for her by a #SyngapSibling who is a talented artist.
  5. With the matching fund we only need to raise $60,000 from the broader community. Then we will have the $127,000 necessary to make a significant contribution to the knowledge of SYNGAP1.

TIME IS BRAIN

SRF IS A GREAT DEAL FOR DONORS

WHAT CAN YOU DO?

  1. If you are fortunate enough to make any gifts this year, please prioritize this project for the sake of the SynGAPian in your life.
  2. If you are not able to make a contribution please consider setting up a fundraiser from the main GoFundMe — just like Chloe and Chris have done — and reaching out to your friends and asking them to support this work. Please contact us to do this.
  3. Another option is sharing out this link on your social media, reminding people that 200% of their donation will go to cutting edge science. https://charity.gofundme.com/o/en/campaign/support-srf-epigenetics

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SynGAP Research Fund Updates

SynGAP Research Fund Updates

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SynGAPResearchFund.com (est. 2018) improves the quality of life of #SynGAP patients via research & development of treatments, therapies & support systems.