PARENT TIPS

NOVEMBER 22, 2021

Maarja is a mother of three. They were the first family in Estonia to receive a SYNGAP1 diagnosis (daughter Elisabet, age 3 in 2018). Maarja is dedicated to raising awareness, fundraising for a cure, and advocating for families of loved ones with special needs .

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SynGAP Research Fund Updates

SynGAPResearchFund.com (est. 2018) improves the quality of life of #SynGAP patients via research & development of treatments, therapies & support systems.

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